Getting a Diagnosis for Amyloidosis With ARC Founder Isabelle Lousada
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Rare Diseases
Actor and Influencer Adam Rose Shares His Rare Disease Story One Video at a Time
Rare Diseases
A Rare Blood Cancer May Lead to Heart Attack and Stroke
Rare Diseases
Alliance for Patient Access’ Rare Diseases Working Group
Rare Diseases
Seeing the Patterns of Primary Immunodeficiency
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The Benefits of Customized “End-to-End” Distribution Services for Rare Disease Drugs
Rare Diseases
Celebrating 40 Years of the Orphan Drug Act
Rare Diseases
Finding Strength and Inspiring Others After 17 Years of Misdiagnosis
Misdiagnosis clouded TV news writer Nika Beamon's mystery disease for 17 years. Now, she’s sharing her story to help others.
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Rare Diseases
Mom on a Mission: Fighting for Affordable Lymphedema Treatment
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Behind the Mystery: The 20-Year Search for a Diagnosis
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Three Actions That Lift the Voices of Those With Rare Diseases
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The Healing Power of Advocacy
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Understanding MPNs and What ET, PV, and MF Patients Need to Know
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Greater Equity Is Needed for Those in the Spinal Muscular Atrophy Community
Rapid advancements in treatments have improved life for people living with spinal muscular atrophy, but societal barriers remain.
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Global Genes CEO Talks Next-Generation Advocacy
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Getting a Diagnosis for Amyloidosis With ARC Founder Isabelle Lousada
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Compassion in Medicine: Why Caring Matters
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A Potential Breakthrough Treatment for Arginase 1 Deficiency Is on Its Way
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Prenatal Genetic Tests Offer New Noninvasive Options