Why Rare Stories Matter
There are more than 35 million people in the United States living with a rare disease and each has a story to tell. #RAREis is helping them do just that.
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Solving Rare Disease Challenges With a Patient-Focused Approach and Advanced Analytics
An estimated 25 to 30 million Americans have a rare disease, conditions that affect fewer than 200,000 people. Historically, it’s been challenging to research and develop treatments for these diseases but that’s changing.
YouTube Star Audrey Nethery Releases Cookbook to Raise Money for Rare Condition
This 9-year-old viral dancer has used her success online to raise awareness for her disease, known as Diamond-Blackfan anemia.