Rare Diseases
Rare Diseases
Global Genes CEO Talks Next Generation Advocacy
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Rare Diseases
Alliance for Patient Access’ Rare Diseases Working Group
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  • Rare Diseases Partners

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    Rare Diseases
    Seeing the Patterns of Primary Immunodeficiency
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    Rare Diseases
    Investing in Partnerships to Overcome Challenges in Rare Disease
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    Rare Diseases
    A Rare Blood Cancer May Lead to Heart Attack and Stroke
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    Neurological Disorders
    How Brooke Eby Is Sharing Her ALS Story
    Last year at the age of 33, Brooke Eby was diagnosed with ALS, a progressive degenerative brain disease that is usually fatal within less than five years of diagnosis. To raise awareness of the condition and give a voice to others with it, she began sharing her journey on TikTok (@limpbroozkit). We talked to her about her experience.
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