NephCure is the only kidney organization solely focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases.
Since its founding in 2000, NephCure has invested more than $40 million in research and pushed for progress in innovation, awareness, and access to treatments.
Whether you are a patient, caregiver, or nephrologist, NephCure is here to serve as your partner and trusted resource.
Make NephCure part of your patient’s treatment plan
Whether you see one or dozens of glomerular disease patients, we know keeping up with the rapidly evolving treatment landscape and ensuring patients receive wrap-around support is challenging. Let us help.
When your patient contacts us, we will provide personalized guidance on every aspect of their disease journey, including:
- Disease education
- Diet and nutrition
- Mental health
- Peer support
- Insurance coverage
- School support services
Also, our online resources about approved therapies and active clinical trials are helpful tools to support physician-patient shared decision-making.
“I refer all of my patients with glomerular disease to the NephCure website and highlight it as a resource and community,” said Dr. Myda Khalid, associate professor of clinical pediatrics and program director of the Pediatric Nephrology Fellowship Program at the Indiana University School of Medicine. “NephCure helps them know they are not alone, and many patients are relieved to find of a way they may be able to give back to others with similar struggles.”
By making NephCure a part of your glomerular disease patient’s treatment plan, you can increase patient adherence and improve outcomes.
Learn more and get connected at NephCure.org or reach us at [email protected].
